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Tuesday, April 19, 2011

It's HARD to Give Away Your Own Kidney!

It is much harder to give away a kidney than you would imagine.

Once I offered my kidney to my friend, the first step was to convince him that yes, I really AM willing to give him on of my kidneys.


Then I needed to find out if I have the same blood type as his.  That's the first of a whole LIST of preconditions if you want to be a 'directed living donor'.


Living donor: a living person who is donating one of their organs (or part of an organ) 
Directed donation: the living donor specifies who should receive the donated organ - usually a relative or friend, but sometimes a stranger!


The blood test was done, and... my friend and I have exactly the same blood type!  That was really great news: my friend can give blood to anyone, but can receive blood only from someone with the same blood type as his.


He contacted the Transplant Center, and within days I received a call from Maria, the Living Donor Coordinator.  She thanked me for my willingness to enter the Living Donor program, then proceeded to ask me a raft of questions regarding my medical history.
Are you diabetic?  Pre-diabetic? Are you hypertensive? Pre-hypertensive?  Do you smoke? How much do you weigh? How tall are you?  How much do you weigh?
(Ok, she really didn't ask that twice, but answering that particular question was REALLY traumatic for me!)
Do you have heart problems? Cancer? What about your family medical history?
Maria gave me an overview of the  donor evaluation process, and asked if I were willing to continue to the next step: testing for my compatibility with the patient. That testing would involve drawing blood.  A lot of blood.  

I'm afraid of needles.  In high school I successfully evaded the tetanus vaccination - only to face it again 12 years later when it was required for travel.

I would be extensively and intensively tested, not only for compatibility with the recipient, but also for my overall health AND the health of my kidneys.
"Once you've agreed to be considered a donor, you'll go through an in-depth assessment of your health. It's your health that is of utmost importance to the transplant team. What they want to know is that: 
  • Your blood type is compatible with the recipient's blood type, and how your tissue antigens match to the recipient's antigens, 
  • You are healthy enough to withstand major surgery and recover completely, and 
  • You have a healthy kidney—preferably the left one—to donate, and you have a healthy kidney to keep—one that can compensate for the loss of a kidney."
- from Living Donors Online 


...That was just the intro to Phase 1 of the evaluation. 

Thursday, April 7, 2011

Why I'm Trying to Give Away a Kidney

My friend was born with Polycystic Kidney Disease - PKD for short.  There are 2 forms of PKD, and he has the form that is inherited from a parent who has the disease.  It doesn't skip a generation.
Polycystic kidney disease... causes numerous cysts to grow in the kidneys. These cysts... slowly replace much of the kidneys, reducing kidney function and leading to kidney failure. 
- National Kidney Foundation -
My friend's kidneys have deteriorated to 10% functionality, so medically he is in end-stage kidney failure.  There are two life-extending options open to him: dialysis, and transplantation.

Were he to go on dialysis, he'd be hooked up to machines which do what healthy kidneys do - remove waste products from the blood, maintain safe levels of sodium, potassium and phosphorous in the body, and regulate blood pressure.  He'd probably be on dialysis 3 days each week, for maybe 4 hours each time.

With transplantation, he gets a healthy kidney from a live or deceased donor.  For the rest of his life, he will be monitored by his medical team AND he will take immunosuppressive medication, which will prevent his body from rejecting the transplanted organ.

If my friend did not have a live donor, he would have been placed on the national waiting list.  More than likely he would have to begin dialysis while waiting on a kidney.
A successful kidney transplant frees patients from the need for dialysis, and is a more effective treatment for kidney failure... Transplant patients have less restrictions and a better quality of life than do dialysis patients. Most people feel better and have more energy than they did on dialysis. 
- RenalInfo.Com -
My friend's father died after 10 years of being on dialysis.  He was never on a waiting list for a donated kidney.

A transplant isn't a cure, but it's the closest thing to it.  My friend's nephrologist (kidney specialist doctor) floods him with success stories.  The transplant center that's dealing with my friend's process is one of the best in the USA, with success rates that exceed the national average.  My friend has lots of first- and second-hand testimonials from people who are living with a transplanted kidney.  These include a woman who's been living with a donated kidney for twelve years.  There's also a  Jamaican gentleman who spent hours on the phone with my friend telling him about his own experiences pre- and post-surgery.

Backed by lots of prayer and the evidence of statistics, my friend and I are optimistic that his quality of life will improve tremendously once he receives his kidney.

My kidney.

Wednesday, April 6, 2011

Just ONE Good Kidney

He has two bad kidneys.  I have two good kidneys.  So I decided to give him one of mine.

It wasn't as momentous a decision for me as one might think.  Being an organ or tissue donor has always been on the back of my mind.  I jokingly tell my friends that I've read WAYYYY too many issues of Readers' Digest, so I've known anecdotally that, if we're healthy, we can live with one kidney, less than 100% of our liver, etc.


Plus, I've always told everyone in my inner circle that, when I die, y'all are to harvest whatever serviceable organs and tissues there are in my body, hand them out to save sick people and promote research, then please, PLEASE burn my body.  Do NOT put my body in a casket and have people gawking at me at my funeral as my body lies there stiff and frozen.  Especially if that body is still overweight.


But I digress.  Back to the kidney story.


So now I'm officially part of the Live Donor program.  I've gone through a whole bunch of testing.  Lots of needles have gone into my veins.  So much blood has been drawn from me that I've stopped keeping track (they once drew 53.6 milliletres at one time, but who's counting?)  They've checked all my body fluids and they've flooded my body with iodine.  They've imaged my heart, chest and belly.  They've monitored how my body processes glucose.  These want to make really really, like, REALLY sure that that I'm healthy, that BOTH my kidneys are healthy, that I'm compatible with the patient, and that, up to the very LAST minute, his body will have a strong chance of accepting my kidney.  


Incredibly, there's more testing to come, plus repeated consent from me, before they actually remove one kidney from my body and put it into his.


Why am I doing this?


Because both his kidneys are bad.  Because if he doesn't have a live donor, he goes on a waiting list for a kidney.  As of April 1, 2011, there are 88,161 people waiting for a kidney.  People with his blood type may be on the waiting list for about 1,852 days.  That's a little over 5 years.  In the meantime, his kidney function would decline to the point where he would need dialysis.  Which means being hooked up to a machine that would do for his body what his kidneys can't do - several hours each day, 3 days each week, every week, until he gets that magic call that there's a kidney available for him.


Or until he dies waiting.


According to the National Kidney Foundation, about 18 people die EVERY DAY in the USA, waiting for an organ donation.


My kidney could save his life.


90.1 percent.  That's the 5-year survival rate in the USA of patients who receive LIVING kidneys from LIVE donors.  As opposed to the 81.8 percent who survive the wait and receive a kidney from a deceased donor.


He has two bad kidneys.  I have two good ones.  He can have one of mine.